82
82
34

Please Help Me Help My Daughter

£7,490 of £50,000 goal

Raised by 89 people in 12 months
I’m mum to Jazi (Jasmine) , she had never been ill until a knee op when she was 18, caused by a silly school prank where a lad dipped his knee aiming for the back of Jazi’s knee, but she turned. He dislocated her knee & for years it was weak & kept dislocating. Operating on her just before she was 18, 4 years ago , now,she is just 22, she had a reaction to the pain killers. Caused vomiting uncontrollable for 3 weeks, this caused a hiatus hernia sliding & acid reflux, her gallbladder stopped working so it was removed. More complications as her liver is pouring acid & bile into her tummy & Jazi is in hospital more than home, she spent most of 2016 & 2017 in hospital on morphine medication PCA for pain. Inside they tried the lynx implant to stop the acid coming back out & making her sick, but her scar tissue took over and clamped the implant shut & stuck her liver to her tummy, she couldn’t breathe or eat or drink A&E called her an addict & it’s all in your head!!! Thank goodness one man believed me & he operated removed the implant & did an upper body dissection to undo all the scar tissue & save her. But she isn’t ever going to be fixed to ok & pain free, like you or me.
The photo shows her last 3 week stay in hospital 2 weeks ago, vomiting, pain can’t eat or drink water.
She had a PICC line in to feed her & was allowed home to try and push through if she can on Fortisip life sustaining drinks, should drink 3-4 a day, but only managing 2-3 in between the sick & pain., now not managing any. 14/6/18. So as of tonight decision is made a feeding tube will be put in next Thursday, earliest there is a bed available.
Lots of pain killers that go into the gum to try and get her through till the operation.
Consultant doesn’t want to do it but Jazi is in a terrible way right now so there is no other choice.
Jazi has a full time job, but has only got into work 4 days this year so far & hasn’t managed to work on her laptop due to sickness & pain an medication, so Work have been amazing,, supporting Jazi, boss visiting her in hospital, but it can’t go on., all she wants is to get back to work as it’s normality & that’s what she wants.
I work full time & don’t qualify for help as I work, it’s my little piece of sanity in a cruel world of twisted fate, my son had to quit his job to help me look after Jazi but so I could still work & try & keep our home.
Jazi isn’t ever going to be pain free again, that much is certain, my son offered her his gallbladder as a transplant but it can’t be done risk is to high, she is too complicated, to pin point one single factor that is causing all of this to happen to her,
The last lot of liquid pain medication was £495 as she can’t get all of the pills in as water and pills make her vomiting start,, tonight’s were £300, you do what you have to do, to try and help her, it’s a lonely place when your child is so poorly as many will know, we are doing our best to keep our heads above water but reality is we are sinking, medications are expensive as is the travel to and from London hospitals to see the specialists.
My ex husband doesn’t have time to sit with Jazi & cant help us financially either.
I’m proud & never asked for help, but my friend said I have to now as I just can’t do it all,. The professor looking after Jazi has said he can guarantee that the operation tomorrow will give her all of the nutrients her body needs to sustain her life with the feeding tube implanted , but he can’t say that her symptoms and pain & sickness episodes will go away, so her need for specialist treatments, medication, 24/7 hot baths to ease the pain, will be ongoing , she will have issues as he feels her actual stomach is not capable of moving food or drink through, hence the pain & sickness when she tried to eat or drink. The tube will by pass the tummy , but  it’s a long expensive road ahead for recovery progression. I’m in debt for medication & treatments tried so far, to reduce her pain of £30k on credit cards , I thought if I paid she would be fixed & we could pay everything off when she was back in Work , it’s gone on & things are a lot worse. Iv put the mortgage on interest free only being paid on a £195k mortgage loan., doesn’t take much to see we can’t pay that off now, I’m also sadly too old now to extend the mortgage out, so I’m fund raising & selling all I can to pay everything off so that Jazi & Ryan will be safe in a home.
So for the 1st time ever I am actually asking for any help anyone could possibly give us to help her , I’m sorry to ask but my friend is right it’s time to ask for all the help I can possibly get, financially or if another specialist can help think of anything that might work.
Thank you for taking the time to read this & if you can help in any way I truly appreciate your help & support, never dreamed I would ever have to ask, but thank you & hoping you give your loved ones that little extra cuddle & spend that little extra time doing good things with them as you just don’t ever know what’s going to change , don’t take things for granted.  We never saw this coming from that stupid lad at school, that triggered a chain of events so so bad.
Kindest Regards & best wishes to you all.
Thank you, 
Carol, Jazies mum xxx
+ Read More
A while since last update as we have been battling detoxing from the strong pain killers as they are not as effective any more, but they don’t have a substitute for Jaz when the normal episodes happen, so it’s pretty tough on her & us to be honest as we are meant to hold back pain medication, but if she goes into A&E all they can do is give her morphine so it’s a vicious circle. Still waiting for the specific liquid for the important Secretin MRI scan, now 7 months overdue & still not here. Jaz can’t have the pacemaker implant as she isn’t strong enough for it so it seems those specialists have switched off as she isn’t able to be a candidate for it. So back to the drawing board on ideas. She visited work yesterday but as soon as her meds went into the tube she was on the floor under the desk crying in pain . People are amazing they let her deal with it get it under control & act as if nothing is wrong so she had a chance of a bit of normality again. I asked if I should take her back home & she said no I want to stay it’s not fair I just wanted to be normal again. She stayed a few hours & my sister came to get her and take her home. Not the life of a 23 year old. I’ve read about some new devices for blocking pain so I’m researching that now to see if that implant could be a possible for her. Fingers crossed the scan liquid arrives soon , will keep you posted. Xx
+ Read More
Jazi back in hospital projectile blood vomit chest infection has created another infection & abdominal infection as well. She is a mess & cant see a way out of this but all consultants & Drs are talking about how to get her through this as a priority & then how they move her to the next stage as the little body is taking a bartering & her head has had enough. Awful day & night but the team have been amazing looking after her . So thank goodness for that. Got to get her through this !! Thank you everyone xx
+ Read More
Little update, So Jazi has a chest infection, so now on additional steroids, antibiotics & inhalers,just to add to her disappointment still no news on when the special liquid for the big MRI test will get into the country. Should have been Dec, then Jan , then March hopefully April , but she is trying her best, coughing is causing a lot of additional pain so sooner meds kick in the better for her thanks for all your support x
+ Read More
Dear Professor O’Callaghan,

I’m just another mother to Jazi, like Karen, mum to Murray, asking you to please help us , Murray has been in hospital for weeks with seizures . My daughter is suffering awful pain for 5 years & unable to be prescribed medical cannabis/ marijuana , but as parents we have the same fight for our children & need your help & support.

I have for Jazi had the medical report done by a psychiatrist all of her consultants want her on it medical cannabis marijuana as the Fentanyl, Oramorph, Diazepam, Tramadol & many others are not helping her as all slow her gut down further, she has Gastroparesis. But we found by accident when I was stuck in traffic one day & one of her friends gave her a joint as they were so scared of her screaming in pain, that it actually worked, I got home to find her relaxed & we didn’t have to go to A&E, that was a first after an episode I was anti cannabis/marijuana until I saw how it’s helped my daughter.
None of my daughters consultants can get it prescribed for her but all want her to be on it as they have seen her when she’s had it and the difference is truly unbelievable, she gets her life back. This is the same for Murray, Karen wants to try Bedrocan & Tilray’s,
I’m now in contact with lots of parents suffering watching their children suffering when if you make the changes to the guidelines the situation can change for all who need it.
YOU CAN HELP MURRAY , JAZI and all the others suffering.

Please Professor Finbar review or remove the BPNA’s current guidelines regarding our neurologists prescribing whole plant medical cannabis with thc, such as Bedrocan & Tilray’s.
We as parents are willing to sign disclaimers & Jazi will sign it herself as she is 22.
You can make a massive difference to so many peoples suffering please help .
With hope, Kindest regards
Carol
+ Read More
Read a Previous Update

£7,490 of £50,000 goal

Raised by 89 people in 12 months
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we will let you know if your sharing brings in any donations.
We were not able to connect your Facebook account. Please try again later.
SB
£25
STEPHEN BRINKLOW
2 months ago
LS
£65
Leila Stephens
3 months ago
NH
£25
Neil Hughes
4 months ago
LB
£100
Laurence Burchall
4 months ago
VB
£50
victoria bryan
5 months ago
£30
Anonymous
5 months ago
LS
£50
Leila Stephens
7 months ago
£150
Anonymous
7 months ago
RH
£30
Richard Hunt
9 months ago
£100
Leila Stephens
9 months ago
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy notice
Receive occasional updates from GoFundMe about how to help others. You can change your preferences whenever you like.
There is an issue with this Campaign Organiser's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a £5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.
Receive occasional updates from GoFundMe about how to help others. You can change your preferences whenever you like.