Orkambi is the most recent drug that I am taking. I have to take it 4 times a day. Can you believe that this drug costs £250,000 per year just for one person like me! That means each tablet I take is about £100.
When I found out how much it costs, I decided I wanted to do some fund raising for Cystic Fibrosis so other children like me would have the chance to use this miracle drug! I am ten this year, so am trying to complete 10 fundraisers during the year.
In November, my school have chosen to support the charity. Mr Stokes, my PE teacher is running a marathon, and my friends at school are running ten miles in ten hours to help raise money for the charity.
Please donate what you can to help!
- St Luke's Academy Endon
- Beth Kirkman
- Shaney Lovatt
- Nicola Doorbar
- Maddison Barnett
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