Florence's campaign for Cystic Fibrosis Trust

My name is Florence and I am ten years old. I have a condition called Cystic Fibrosis. Cystic Fibrosis or CF as you might hear people say is a genetic lung condition, which makes me produce more mucus on my lungs than other people.

Orkambi  is the most recent drug that I am taking. I have to take it 4 times a day.  Can you believe that this drug costs £250,000 per year just for one person like me! That means each tablet I take is about £100.

When I found out how much it costs, I decided I wanted to do some fund raising for Cystic Fibrosis so other children like me would have the chance to use this miracle drug! I am ten this year, so am trying to complete 10 fundraisers during the  year.

In November, my school chose to support the charity. Mr Stokes, my PE teacher ran a marathon, and my friends at school ran ten miles in ten hours to help raise money for the charity.

On 19th June I am running a sponsored swim for 10 year old Florence, who is raising money for Cystic Fibrosis. Florence and her friends will be be swimming 12 miles between them (that's 1545 lengths!!) See poster below for more information and visit her go fund me page to read more of her story and to support this amazing cause if possible. Many Thanks, Julie

Please donate what you can to help!
  • The Nelson Inn 
    • £180 
    • 29 days ago
  • Clare Bullock 
    • £5 
    • 2 months ago
  • Paul Mason 
    • £10 
    • 2 months ago
  • Kate Faulkner 
    • £70 
    • 2 months ago
  • Caroline Leadbeater 
    • £40 
    • 2 months ago
See all


Jason Stokes 
Endon, West Midlands, United Kingdom
Cystic Fibrosis Trust 
Registered charity
Donations eligible for Gift Aid.
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