Florence's campaign for Cystic Fibrosis Trust

My name is Florence and I am ten years old. I have a condition called Cystic Fibrosis. Cystic Fibrosis or CF as you might hear people say is a genetic lung condition, which makes me produce more mucus on my lungs than other people.

Orkambi  is the most recent drug that I am taking. I have to take it 4 times a day.  Can you believe that this drug costs £250,000 per year just for one person like me! That means each tablet I take is about £100.

When I found out how much it costs, I decided I wanted to do some fund raising for Cystic Fibrosis so other children like me would have the chance to use this miracle drug! I am ten this year, so am trying to complete 10 fundraisers during the  year.

In November, my school have chosen to support the charity. Mr Stokes, my PE teacher is running a marathon, and my friends at school are running ten miles in ten hours to help raise money for the charity.

Please donate what you can to help!

Donations

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  • Beth (Easter Egg Sacrifice for extra donation Money) 
    • £5 
    • 7 days ago
  • Jessica Oliver 
    • £15 
    • 7 days ago
  • Megan Marlow 
    • £50 
    • 8 days ago
  • John Hands 
    • £20 
    • 8 days ago
  • Smartphone Quiz Knights 
    • £700 
    • 8 days ago
See all

Organiser

Jason Stokes 
Organiser
Endon, West Midlands, United Kingdom
Cystic Fibrosis Trust 
Registered charity
Donations eligible for Gift Aid.
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