Please help me raise money to pay for private cancer treatment options for my rare 1 in a million Appendix Cancer. I never thought I’d be in this position, asking for peoples help to fund treatment for a rare cancer. I humbly ask for your support and will be immensely grateful for any contribution you feel able to make.
I’m Georgina, a 44yr old mum, wife and daughter with a rare, 1 in a million, advanced, stage 4 Appendix Cancer also known as Pseudomyxoma Peritonei. I live in rural Northumberland, where I’m mum to my lovely kids and married to my amazingly supportive husband Paul.
I need help to fund treatment options which could make so much difference to my cancer, quality of life and life expectancy.
I was diagnosed with cancer in August 2018 after a few months of worsening IBS symptoms. Whilst doing yoga I realised I could sense a mass in my pelvis, I felt like I was pregnant. It took a further 6 weeks of gruelling hospital visits to work out that I had the really rare cancer. I was stage 4 and advanced at diagnosis. Initially I was told I was inoperable and palliative with a few months to live.
Fortunately I was referred to Basingstoke Hospital, a specialist centre for my cancer. It was 7hrs away from home but they agreed to operate on me. I had a massive 10 hour surgery in Oct 2018, which removed 80% of my cancer but didn’t cure me. My cancer is life limiting and considered incurable.
At the time of diagnosis I was working as a Senior GP and Associate Medical Director and then suddenly I was the really sick patient.
I then had chemotherapy from Jan - June 2019. Whilst on chemo I had major sepsis with a bowel obstruction and nearly died in Feb 2019. Emergency surgery saved my life. In Oct 2019 I had another bowel obstruction and went through my 3rd major laparotomy surgery in 12 months.
Unfortunately I failed to respond to chemotherapy and my cancer progressed and spread to my lungs.
I have a genetic mutation which doesn’t respond to standard chemotherapy. I have a 20% chance of responding to 2nd line chemo and privately funded Avastin. I am not suitable for immunotherapy and have no other standard NHS treatment options available to me.
I then started researching other treatment options and discovered an amazing specialist, Private GP led clinic in Aberdeen - Camphill Well-being Trust. They offer integrative medicine treatments including intravenous Mistletoe therapy and intravenous Vitamin C. They have had great success treating patients who have run out of options, and published case reports of complete remission in terminal patients given 3months to live.
I have found some hope and I am booked to start 2 weeks of intensive treatment in late November 2020 and then will continue treatment at home for the foreseeable future. All this treatment needs to be privately funded. I am required to have a constant companion to care for me during my treatment and Paul, who is self employed, will be taking time off work to travel with me. The money raised from this page will be spent on the treatment process.
Due to my poor health I am unable to work and retired from my beloved career in Oct 2019.
I continue to use my skills as a Trustee for Pseudomyxoma Survivor Charity and Rare Radicals, an online cancer community which I recently co-founded.
I never thought I’d be in this position asking for peoples help to fund treatment for a rare cancer. I humbly ask for your support and will be immensely grateful for any contribution you feel able to make.
Thank you, Georgina x
- Susan Kay
- Joan Dillon
- Jill Duncan-Hall
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