On 19th May 2018, we lost our mum at age 53 to cervical cancer that had metastasised. She had cervical cancer back in 2000, had a full hysterectomy and radiotherapy, getting the all clear in 2010. It was fantastic 6 years later in 2016 that her first grand daughter was born Naomi, quickly followed by Ryleigh and Poppy in 2017. However happiness was short lived in November 2017 following a year of being back and forth to doctors she was re-diagnosed with cervical cancer, this time it had spread throughout her body and by May 2018, six and a half months later she had passed away. Leaving our small family, my two brothers and I with our daughters and partners.
On 1st May 2019, not even a year later my brother, Chris had been feeling weak, drained and vomiting, I chased him to go to the GP and following bloods there was some concerns and he was forwarded for an ultrasound of his abdomen. In July 2019 he received that ultrasound and the events to follow are devastating. He had a 10cm mass on his liver which was cancerous, exceptionally rare to the point that the oncologist he seen stated that he wouldn’t normally see people with his type of cancer that they are usually passed long before it is even diagnosed. He had fibrolamellar hypocellular carcinoma, the plan was; provided it had not spread it could be operated on. Unfortunately, it had spread to the lymph nodes and surgery was not an option. At this point it was very much a trail and error case with treatment as it was so rare there was not much research or treatments trailed before. He had started treatment, initially chemotherapy and underwent 10 rounds of his first cycle before Covid hit in March 2020. He had during this time been admitted with numerous infections and stints in hospital. This was followed by numerous CTs and MRI’s to review the progression of the disease, with pain becoming excruciating and him being in agony, this limited what he could do with his then 3 year old daughter, which was heart breaking in itself. He began working with the hospital to create a memory book and box for his daughter to remember her daddy as he knew that he wouldn’t see the little person she would become.
His scan in November 2020 indicated that the disease had spread to his bones in the spine and he had a large fracture causing the pain. He underwent some radiotherapy to target the area to help with pain management. His daughter then turned 4 in December 2020 and 8 days after her birthday he had another scan, this time indicating more spread to the lower and upper part of the spine. Chemo was put on hold (which was a new type to see if it helped) and radiotherapy was an option as he waited on this, his pain increased and he had started to get chest pain and a chesty cough, scared to cough encase he broke any bones. On 1st February 2021 he was admitted to A&E for pain and suspected infection in his lungs.
On 3rd February 2021 he was given the devastating news that the disease had spread to the lining of his lungs, causing inflammation. In addition, there was multiple fractures up his spine and the disease was beginning to constraint his nerves in his back which could result in paralysis. Basically, he is bed bound, any movement could result in his spinal nerves being compressed causing paralysis. As if this wasn’t bad enough news, chemo would no longer be an option and he now only has a matter of weeks to live.
At 30-year-old my brother should not be sitting planning his funeral, planning for leaving his young daughter and getting his will sorted, especially after it being so close to only losing our mum just over two and a half years ago. As you can imagine he is in absolute bits that he will not see his little girl go to primary school, secondary school, university possibly, get married, see his grandkids, none of the stuff we look forward to for our kids.
His last wish is that he can pay off the rest of his mortgage or as much as he possibly can to leave his daughter Naomi a gift when she is older, as he won’t be around for all those special moments in her life. I would be so grateful for absolutely anything that you could give to help support so that he is one step closer to his dying wish for his little girl.
Thanks so much.
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