Help Kevin McIvor fight Neuromuscular Scoliosis

Hello everyone, I’m writing this on behalf of my friend and work colleague Kevin, his wife and four young children. 


Kevin is 36 years old and was born with  a neurological condition called Arnold Chiari malformation, Syringomyelia and neuromuscular 
 scoliosis.  Kevin wasn’t aware of this until he was 16 years old when he contacted his GP with back pain. Kevin attended Musgrave Park Hospital for his scoliosis and  was discharged by his Orthopaedic surgeon around his 19th birthday as his scoliosis was deemed mild and with his age, surgery was not recommended.

Kevin continued with his life as best he could until last year when a he collapsed in his garden with back and leg pain.Kevin’s wife drove him to Antrim  area hospital.With the ever mounting pressure on the NHS, Kevin was sent home with pain relief. Kevin knew his spine was failing, and he had to seek additional  advice.

During this time Kevin joined a Scoliosis group on FB. He got to meet new people who shared his life long battle with this debilitating disease and who also seeked treatment outside the NHS. Dr  Ahmet Alanay from Acibadem Maslak Hospital in Istanbul was recommended to Kevin.

And so,Kevin traveled to Istanbul to meet Dr Alanay on  the 6th April 2021.  A range of MRI’s revealed the extend of  this scoliosis.Dr Alanay advised Kevin that surgery needs to take place within a matter of months as his spinal cord is under severe pressure from the progressive form of scoliosis and the risk of being paralysed if left untreated.  The cost of the surgery will be in the region of £45-55k.  

Any  help towards medical costs will be greatly appreciated by Kevin and his wife Annemarie.

 

Many thanks #teamkevin#

https://www.columbiaspine.org/condition/neuromuscular-scoliosis/

https://betterthanspinalfusion.com/turkey/ahmet-alanay.html

https://youtu.be/ZCY2m-ct_pc
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Organiser and beneficiary

Aidan Lavery 
Organiser
Cookstown, UK
Kevin McIvor 
Beneficiary
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