is just 2 years old he has been diagnosed with a very rare genetic condition Alternating Hemiplegia of childhood (AHC) which affects 1 in a million children along with global development delay and myclonic dystonia, which is a neurodevelopment disease it can vary from one side of the body paralysis to full body paralysis depending on the severity of his episode. This disease AHC is like having Parkinson's disease, ADHD, stroke, cerebral palsy, epilepsy & Alzheimers disease. This little boy is on medication already to help control his dystonia this is so frustrating and is badly effecting Kylian’s development.
We as a family are all helping and struggling together we are asking for any donation welcome to help us for adaptions in the home along with providing Kylian with the best quality of life as possible with parents not being able to work full time, due to such complex needs, treatment & hospital appointments.
please help us
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- Courtney Gilbert
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- Elaine Hardy
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