Oğlumuz Mirhan Deniz SMA tip1 kas hastası,bebeklerde 2 yaşına kadar tedavi edilmezse ölümle sonuçlanan en ağır kas hastalığı tipi.
Bu hastalıkla Mirhan 3 aylıkken tanıştı hastalığın kesin ve en etkili tedavisi şu an Amerika'da dünyanın en pahalı ilacı olan ZolgenSMA ilacın fiyatı 2.3 milyon$.
Bu ilaca ulaşabilmemiz için desteklerinize ihtiyacımız var Mirhana bağış yaparak ve profilimizi paylaşarak yardımcı olabilirsiniz destekleriniz Mirhan'a nefes olup bir bebeğin hayata tutunmasını sağlayacak..
Mirhan Deniz is suffering from SMA type 1 (Spinal Muscular Atrophy). SMA Type 1 is a life-limiting condition. Though it is not possible to accurately predict, the majority of children (approximately 95%) life expectancy is less than 24 months. l.
The good news is that there is a treatment available that is proven to be effective. Mirhan Deniz would need to travel to the US to receive gene therapy with a medicine called Zolgensma. Zolgensma is the most expensive drug ever approved by the FDA. The cost of this treatment is 2.3 million Dollars. This is Mirhan Deniz's only chance, and you can help save his life!
Campaign operating with help of Ali Rıza Daylak. He is a volunteer on this campaign also he is uncle of Mirhan Deniz.He is the only person that family has as a relative in the United Kingdom. This is why he will collect the money in the Uk then he will transfer the money to the family in Turkey.
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