Oscars Bucket List of Dreams

We are trying to raise money for our nephew, Oscar, who was recently diagnosed with a life-limiting condition called Battens Disease. Oscar is 8 years old and over the past few years has developed various conditions which we believed were unrelated to the disease. But in February 2020 the family’s world was torn apart by the news that all his symptoms were actually due to this horrific degenerative neurological condition. Battens has already taken Oscar’s sight and made him develop Autism and ADHD. We now face a future where Oscar will develop further conditions such as epilepsy, his motor skills will fail and will become unable to walk and talk, he will lose his memory, the equivalent to Childhood Dementia, he will lose the ability to swallow and will require feeding through a tube and will eventually become dependent on 24-hour specialist care. We don’t know how long we have with Oscar as most children lose their battle with this life-limiting disease in their teenage years.

Over the last few years, the family & friends have stood by Oscar’s side whilst he has dealt with some of the biggest changes to his life. Communication boundaries, losing his vision and now this terrible disease. Oscar doesn’t know the outcome of the recent diagnosis but I’m sure his reaction would be the same as every other obstacle he has had to face, to not complain at all and just crack on with life. We can count on one hand the number of times we have heard Oscar complain about anything. Oscar’s 2nd cousin once used the expression 'Be More Oscar’ when describing how we should all look at life in a positive upbeat way the way Oscar does, and this couldn’t be more fitting! Growing up, most people look at their parents and aspire to be like them, but now we’re looking to Oscar and gaining inspiration from him! So now we wish to #bemoreOscar, hence the title of our Facebook page.

The news of Oscar's illness has left us all bewildered and as we pick ourselves up and look to the future we desperately want to support the family and help tick off Oscar's Bucket list of adventures in the precious time we have with him. From simple things like watching the Sooty Show to larger dreams of visiting Lapland at Christmas, each memory we create gives the family strength on the journey ahead. The family have received such amazing emotional support from those around them and have been asked how they can also be supported financially to give the gift of these adventures, so we have set up this Gofundme page for Oscar’s Bucket List of Dreams!

If you wish to donate then we all can’t thank you enough and will make sure all of Oscar’s and the family’s cherished memories are shared on our dedicated Facebook with our heartfelt love and thanks. If you want to understand more of what the Jealous Family are going through please visit the Facebook page https://www.facebook.com/bemoreOscar/ where you can Reach out, Subscribe, Like, Share or Get Involved.

Thank you for reading and if you can be anything right now in these uncertain times please #bekind and most of all #bemoreOscar

Much Love, Laura & Danne x x x

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Donations

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  • Anonymous 
    • £10 
    • 1 mo
  • Emily Bosworth 
    • £10 
    • 1 mo
  • Krystyna Cracknell 
    • £10 
    • 1 mo
  • Anonymous 
    • £10 
    • 1 mo
  • Marie Goggin 
    • £10 
    • 1 mo
See all

Organizer

Danne Colclough 
Organizer
Shirley, West Midlands, United Kingdom
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