Leola is a fun, high-spirited 8 year old who lives in her own bubble.
She started struggling around age 2, when she refused to eat foods that weren't beige or bland. We lost all the fruits and vegetables! Along side this she started becoming behind on the developmental norms.
Nursery was ok, as she was in a small very quiet setting. However, when she started school she took a very quick downward hill. Unable to cope with the sensory and developmental pressure of school Leola started having increasing melt downs, she lost all ability to cope.
At breaking point we electively home educated (although not really elective as we didn't have much choice). This has given her a controlled environment but it isn't a long term solution, as without me caring for her day to day, she wouldn't cope. This is mainly because she can't formulate enough communication to inform us of her basic needs.
We have been in the NHS system now for nearly 5 years trying to gain answers in what is going on with my little girl. Desperate to understand her world, so we can slowly introduce her to the world around her. To enable us to help teach how to function in society so she can enjoy life again.
However, we still have no answers. And with no where else to turn we started looking for a private practice that could Help us Help her.
We have been informed Leola needs a ADOS-2 and DISCO assessments for autism and Sensory profiling. (Unfortunately not available on the NHS in our trust).
We have found a specialist in Cheshire who specialises in girls and are able to help us, but unfortunately this comes with a cost.
Further to this, to gain answers to Leola's developmental delays she needs to be seen by an Educational psychologists, again not available on the NHS.
So we are asking friends, family, people we may not know to Help us Help Leola.
(We are happy to provide more information, on prices etc just email me or contact me.)
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- Joanna Horn
- Peter Carrington
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