He was diagnosed with Chronic Lung Disease while he was in hospital; his lungs were very weak as they didn’t fully develop as he was born so premature, and this meant that he had to use oxygen 24/7. Fortunately, over time, it was just over night.
Once Ezra reached one year we noticed he wasn't meeting the milestones which a child his age should be.
We stayed hopeful in the understanding that he would have a slower start due to his prematurity, but of course we always knew there may be complications that come with being so premature.
Once he reached two years old he still wasn’t showing any signs of sitting or standing, and he also had lack of head control and speech. There were many other signs and deep-down we knew that something was wrong.
The team that he is under at the Royal London Hospital became concerned, and so he underwent a brain scan which would pick up on any signs of abnormalities.
The scan showed brain damage on both sides, and this has also damaged the nerves in his brain; these are the nerves which we use to send signals to the rest of our body to, for example, stand and sit up. Unfortunately, due to the extent of his brain-damage, our son can't make this simple transaction.
Due to the brain damage that Ezra has from being born 3 months premature, there was always a huge chance of complications and sadly our son recently has been diagnosed with Cerabal Palsy. Cerebral palsy has many forms, but it is a name for a group of lifelong conditions that affect movement and co-ordination.
Ezra is such a happy child, always laughing and smiling, however we as his parents see first-hand how it effects his everyday life; eating, chewing food, standing, sitting up; these are all things that he cannot do independently and struggles with extremely. He gets very frustrated trying to do these things and as a stress response by not being able to do so, he will start to punch and slap himself repeatedly on his head. It crushes us to watch this and see our baby Ezra so upset that he can't perform these simple actions.
It is absolutely heartbreaking as his parents to not see our little boy running up to us and holding our hands as we walk in the park. Hearing him call us Mummy and Daddy. Watching his little legs twiddle and twoddle along as he trips up and laughs. We just want our son to have the best chance in life and not have such limitations, but as we stand his future is going to be extremely complicated.
However, there is light at the end of the tunnel! after carrying out extensive research on ways we can help our son, we came across a clinic in Switzerland which carries out Stem Cell Therapy specifically for children and adults with Cerebral Palsy. They have explained to us that they will use his own stem cells to attempt to repair the damaged nerves in his brain. If successful, it may not only help our sons development, but it has the potential to change his life. One surgery costs €20,000 but with Ezra’s level of brain and nerve damage it is likely he will need two treatments. Until then he requires intensive and specialist pyhsiotherapy, advanced equipment for home and a hydrotherapy pool to get his muscles and abdominal muscles strong. All of this comes to a lot of money and we need your help to make this all possible for our Son.
Thank you so much for reading this, honestly. Any donation will get us one step closer to giving Ezra a chance of being the little boy, and man he should have been.
- Deborah Oliver
- Charlie Lamble
- Dannielle Bird
- Poppy Draper
- Karina O'Friel
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