Aspen has struggled nearly all her life with ALL, acute lymphoblastic leukemia, and has endured both a bone marrow transplant and CAR-T cell immunotherapy. She tested positive for Covid-19 in late November and ended up being hospitalized and put on oxygen after having a high-grade fever for a month, and also unable to keep her oxygen levels high enough. It seemed she was getting better, and she got to go home for a few days, but was readmitted and diagnosed in mid-December with pneumonia in both lungs. Her body started showing signs of internal inflammation, meaning she had Covid induced MIS-C, Multisystem Inflammatory Syndrome in Children. She continued to decline, having now pneumonia in both lungs, very high fevers, and declining oxygen levels. Her treatment is very tricky, since some of the medicine being used to treat MIS-C can seriously interfere with her previous cancer treatments, and there’s the fact that her immune system doesn’t have the proper cells to defeat the Covid virus. The doctors are assuming that she is still carrying the live virus, after all this time, and have her and her mother isolated in a room, and all health care personnel enter the room with full PPE.
Aspen and her mom spent Christmas away from the family, her health still declining, and on New Year’s Eve she was admitted to the PICU, where she ended up on a ventilator, and feeding tube. She is still in the PICU, currently stable it seems, hooked up to many IVs and her ventilator and feeding tube, after doctors started trying some new immunotherapy on her. However, her body is still fighting, her heart has taken a beating, and she has currently just come down from a paralytic state to give her heart and body some time to heal. Her dad and brothers are still waiting for her to get well enough to celebrate Christmas together.
Her mother, Amanda, will be with her while she is in the PICU, since only one parent is allowed at a time. The doctors are estimating that Aspen will be in the PICU for several more weeks, and that she won’t be going home for at least 2 months. This means that, after using up her 2 weeks of vacation to be with Aspen, she will have to take unpaid leave, which also means having to pay for her health benefits out of pocket. This will be a devastating financial burden for the family, who has struggled with medical bills since Aspen was first diagnosed with leukemia when she was just 4 years old.
Aspen desperately needs your prayers, and Amanda needs to focus her energy on her daughter, and her healing, not the stress and worry of how they are going to pay the bills. Any amount will help, but they will need to raise the full amount to be able to cover all the expenses. Amanda thanks each and every one of you that feels the calling to donate. Please keep Aspen in your thoughts and prayers.
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