05/10/2020 - I have been diagnosed with CIC FOX04 Sarcoma. As my first line treatment of chemotherapy has stopped working (I’m currently on my second line however I feel and notice growths) I am looking to do immunotherapy as soon as possible. Depending on where I go this could cost up to £100,000. There are also no clinical trials currently available in the UK. He and his partner, LaTroya, are fundraising to help meet the cost of private treatment in the UK or abroad (depending upon his ability to travel), in order to regain some of the time lost by his delayed diagnosis and help meet cancer-related expenses. The current target is £55,000, as this allows the option to be treated privately in the UK (travel abroad would be £100-200,000). My Story In September 2019 I had gone to my GP with groin pains and was provided with some antibiotics. In January 2020 the pains came back and I went back to my GP again and was given more antibiotics. I assumed I was healed as the pains eased up. in March of 2020 the pains had come back with a vengeance and I started getting pain in my right leg, my right buttock, and had developed a hard lump by my rectum. I went to LGI Leeds and St James’ Hospitals. They sent me a sexual health clinic. It didn’t matter that I told them I couldn’t have an STI. They were so convinced that I might have one that I began to believe it myself and started thinking maybe I had picked it up from sitting on a public toilet. I had so many blood tests and swabs. They were all clear. Meanwhile, the pain was so bad that I kept going back to the hospitals, begging for a scan to see what was wrong. Another doctor who saw me then said they thought I had prostatitis and gave me antibiotics. I told them I thought they were wrong, but no one would listen. I did my own research and knew it was something else. I kept begging them in April and May to give me an MRI scan, but no one would listen. Both my GP and my consultant told me that I couldn’t get a scan because scanning services were slowed down because of the coronavirus. By this time my pain was so excruciating and I felt so unwell and so exhausted that I was almost suicidal. It was only when I had to go back in because of problems with the catheter and a fourth urologist saw me that the diagnosis of prostatitis was questioned. That doctor told me it was “ludicrous”, but he then diagnosed the lump by my rectum as an abscess and decided to drain it the same day. He also didn’t do a scan and I don’t think he got the fluid he drained checked to see what it was. What I now know is that this ‘abscess’ was probably part of my tumor. Five days after my abscess was drained, I was still in terrible pain and was losing muscle mass and power in my right leg. I went back to the hospital and was eventually given the MRI scan I had been begging for on 26th May. The scan revealed that I had a large 14cm mass in my pelvis and that the ‘lump’ by my rectum was probably part of a tumour. I was told that this was probably an aggressive sarcoma (a malignant tumour) and to prepare for the worst. Because of coronavirus, I was given this news on my own. It was devastating. A biopsy later revealed that I have something called ‘CIC small round blue cell sarcoma’. Sherwin and his family are being advised by Mary Smith, Associate Legal Director from Novum Law, who is an expert on medical law and patient safety. I’m now fighting for my life because I didn’t have a scan. I should have had the scan months earlier but did not because normal NHS care was suspended because of the coronavirus.
- Gjoshua Gibbons
- Sara Durham
Organizer and beneficiary
Leeds, Yorkshire and the Humber, United Kingdom