Help Nicole Beat Chronic Lyme

$44,826 of $120,000 goal

Raised by 265 people in 31 months
From Nicole:
"Dear friends,

As you may know, I have been struggling with a variety of strange health problems off and on that have been getting steadily worse over the past several years. After visiting a myriad of doctors, I have finally received a comprehensive diagnosis and the answer is complex.

I have a dangerous combination of tick-borne infections that have become chronic and incredibly difficult to treat – severely weakening my immune system and affecting every part of my body. Without knowing it at the time, a tick bite on a backpacking trip six years ago caused me to become infected with Lyme disease and the co-infections Babesia (a parasite) and Bartonella (a bacteria). For some people, typical presentation does not immediately occur and these illnesses can slowly wreak havoc destroying health over the course of years, as was the case for me. Due to my now compromised immune system, I also have a deeply rooted chronic staph infection called MARCONS (Multiple Antibiotic Resistant Coagulase Negative Staphylococci), a digestive bacterial imbalance called SIBO, multiple types of mold (yes, mold) colonization within my body, Candida enteritis – a chronic fungal infection in my digestive system and other areas (which also tested positive for an unusual resistance to most typical therapies), as well as severe allergies which now require me to carry an Epi-Pen.

Although I still look OK, these illnesses have at this point left me disabled in a plethora of ways, as I continue to lose strength and the ability to power through my day as time goes on. I can no longer hike, surf, dance, take long walks, or do many of the things I love best. Even playing my instruments for too long results in painful hand cramps. The scariest part is that it will only continue to get worse if left without prompt and proper treatment. Chronic Lyme patients can develop fatal cardiac infections, brain damage, increased risk for cancers and more. Symptoms change and spike in severity giving me some good days where though I don’t feel well I can push myself hard to do things and other days where I can’t get out of bed at all.

To give you an idea of what this is like, just a few of the symptoms I battle with include: insomnia that prevents me from sleeping more than a few hours without interruption (even with medication), severe bone and joint pain, crippling fatigue, speech problems that come and go, nerve pain, difficultly breathing at times (which has forced me to carry an inhaler), painful rashes and itching (especially in sensitive areas,) memory loss, feeling “foggy” all the time, low white blood cell count, digestive hormonal imbalance, depression, anxiety, mood swings, suicidal thoughts, hypothyroidism, menstrual pain and abnormal cycles, muscle twitches and cramps, inability to heal fully from injury, severe and longer lasting infections from other ordinary illnesses, and more.

My health is quickly getting worse and it is imperative that I start treatment as soon as possible. Considering the complexity of the situation, we plan to see a leading specialist on tick-based infections who will craft a custom treatment plan to tackle everything in the best way possible, step by step.  Luckily, my diagnostician seems  confident that with the proper treatment, I could be healthy again in as little as two years.

Unfortunately this condition is not yet recognized by the Center for Disease Control (CDC), and as such, we’ve been told that little to none of the treatments are likely to be covered by insurance. While we plan to pursue every resource and assistance program at our disposal, the treatments and medications could cost more than $1,000 a week upfront, and the doctors have told us it will take at least two years to beat this. Due to the difficulty of diagnosing this particular set of illnesses, we’ve exhausted our limited savings just getting to this point, so we are hoping and praying for your support. You truly can help save my life – every donation helps, no matter how small, as does sharing this page with your family, friends, and colleagues.

Thank you so much for your time, your love, and all your support and generosity. Any help whatsoever that you can provide is truly a miracle and a blessing to our family!

Sincerely,
Nicole Saari


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Learn more about:

Lyme disease - ILADS.org

Chronic Lyme - LymeDisease.org

Co-Infections - LymeDisease.org

"When Not Feeling Like Yourself Can Be Life-Threatening" - Cosmopolitan

"Lyme: The Infectious Disease Equivalent of Cancer, Says Top Duke Oncologist" - Huffington Post




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Rewards:

For anyone who may be interested, my mom Genie Davis,  a professional journalist, corporate media pro, novelist, arts professional and editor/writer at www.DiversionsLA.com, is graciously offering the following services for interested donors.

With a donation of $300 (select one):

-published artist profile and description of work (up to 750 words; see www.diversionsLA.com for samples)

-writing critique (screenplays, novels - detailed critique which will vary in word count)

-marketing/promo/PR material for any retail business, artistic work, musical act, or social organization (up to 1,000 words)

-one week full social media campaign (Twitter, Facebook)

With a donation of $500 or more (select one):

-corporate writing: video script, training manual, PR, marketing material (length depends on need)

-grant proposal writing

In addition, photographer Gloria Plascencia is generously offering a free photo package with a donation of $250 or more (a $375 value!) Learn more about Gloria at www.gloriaplascencia.com.

Those who donate interested in these services can contact Genie at genie@diversionsLA.com.
+ Read More
Dear Friends,

Thank you so much for all of your ongoing prayers and support! We are preparing an update to catch you up on the events of the past year, but in the meantime we wanted to invite you to our latest FREE benefit event taking place July 21st at LA's TAG Gallery.

Hosted by Genie Davis with Linda Sue Price, this event is the perfect way to start your summer art shopping. It will include a silent auction and raffle featuring dozens of AMAZING artworks from prominent Los Angeles-area artists, plus live music, hors d’oeuvres, drinks and more - all in support of Nicole's ongoing battle against Lyme Disease.

Click here to learn more and RSVP: https://www.facebook.com/events/2450740504949174/

Artworks available for auction or purchase include contributions by Catherine Ruane, Valerie Wilcox, Sandra Vista, Ron Therrio, Kaloust Guedel, Zadik Zadikian, Robyn Alatorre, Stephen Levy, Skye Amber Sweet, Carl Shubs, Trine Churchill, Robyn Alatorre, Phil Santos, Karrie Ross, Tom Dunn, Cynthia Friedlobe, J.J. L’Hereaux, Chenhung Chen, Gary Pawler, Bleep, Diane Williams, John Waiblinger, Nathalie Tierce, L. Aviva Diamond, and many more to come! We will be updating with images via Facebook and Instagram with opportunities to pre-purchase online. (YES, WE ARE ONCE AGAIN EAGERLY ACCEPTING ART DONATIONS!)

Photographic Artist Gloria Plascencia is donating a photo portrait package; artist Cansu Bulgu is donating 5 live personal sand paintings; Genie Davis is offering writing services. PLUS! Gift certificate from Liz’s Antique Hardware. You'll also find jewelry, beauty care and personal health products, gift certificates and more...

We look forward to seeing you there!

Love,
Ben, Nicole and Aaron
+ Read More
THIS JUST IN: We've added some fantastic new prizes up for auction at tomorrow's event, like:
- Los Angeles Dodgers tickets (great seats, parking included!)
- Tickets to The Will Geer Theatricum Botanicum
- Tickets to the premiere of "Cry It Out" at Echo Theater Company
- A 90-minute Massage and Reiki session from Nicole Damato
And more! Can't wait to see you all tomorrow!

FREE admission! Plenty of parking!

Saturday, June 23rd | 3:00 - 5:30pm
TAG Gallery
5458 Wilshire Blvd, Los Angeles, CA 90036

Learn more and RSVP:
https://www.facebook.com/events/164615334390893/

If you can't make it tomorrow or live outside of SoCal and are interested in viewing the art or other prizes to bid or purchase, please let us know and we'd be happy to accommodate. Thank you!
+ Read More
This Saturday, we hope you will join us at our latest Lyme Away benefit event at TAG Gallery on Wilshire Blvd (near LACMA)! Enjoy delicious food, live music and dozens of beautiful artworks from prominent Los Angeles-area artists to raise funds for Nicole and Aaron's medical care for chronic tick-borne disease.

FREE admission! Plenty of parking!

Saturday, June 23rd | 3:00 - 5:30pm
TAG Gallery
5458 Wilshire Blvd, Los Angeles, CA 90036

Learn more and RSVP:
https://www.facebook.com/events/164615334390893/

If you can't make it this Saturday or live outside of SoCal and are interested in viewing the art to bid or purchase, please let us know and we'd be happy to accommodate. Thank you!
+ Read More
Hi everyone! If you’re in the Southern California area, we’d like to invite you to our next Lyme Away benefit taking place Saturday, June 23rd at TAG Gallery, organized by Nicole’s mom Genie and artist Linda Sue Price!

Enjoy an afternoon of food, drinks, and dozens of art works donated by prominent Los Angeles area artists to raise funds for Nicole and Aaron's medical care.

Learn more and RSVP today at www.facebook.com/events/164615334390893/
+ Read More
Read a Previous Update
Mari Hulick
31 months ago
1
1

Nicole - I am so sorry to hear of your struggles with Lyme disease. My thoughts are with you. I'm sure you know the story of the great Kathleen Hanna. I hope you get the same help she's had.

+ Read More
Ben
6 months ago

Please tell me how we can get this kind of help on my page. Mine is for Lyme as well but we are struggling to get anything together, and have only been up one month less. Any information helps and thank you.

+ Read More

$44,826 of $120,000 goal

Raised by 265 people in 31 months
Created 9 December 2016
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MW
$100
Monica Wyatt
1 day ago

You’ve got this, Nicole!! Sending you love and healing. ❤️

DK
$200
Debbie Korbel
2 days ago
$250
Osceola Refetoff
4 days ago
YS
$30
Yoshie Sakai
7 days ago
VM
$40
Victoria May
13 days ago

Best wishes for regaining health

SM
$50
Stuart Marcus
18 days ago
LB
$35
Lori Berezin
21 days ago

Dear Nicole, I truly hope you can get more help and manage this once and for all! Love, Lori

JD
$100
Jeanne Dunn
22 days ago

There are times when a person is battling with a health issue, and it could easily be any one of us. Nicole is in this situation and is grateful for any help we can give, guys!

TS
$115
Terry Sweany
9 months ago
Mari Hulick
31 months ago
1
1

Nicole - I am so sorry to hear of your struggles with Lyme disease. My thoughts are with you. I'm sure you know the story of the great Kathleen Hanna. I hope you get the same help she's had.

+ Read More
Ben
6 months ago

Please tell me how we can get this kind of help on my page. Mine is for Lyme as well but we are struggling to get anything together, and have only been up one month less. Any information helps and thank you.

+ Read More
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