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Help Save Jade - Hodgkins Lymphoma

£38,353 of £50,000 goal

Raised by 823 people in 3 months
Who am I?
I'm someone that wants to live - a partner of 12 years, a daughter, a sister, an aunt, a niece, a cousin, a friend, a colleague and sometimes a pain in the butt.

In February 2017, at the age of 34, I was diagnosed with Stage 4 Hodgkin's Lymphoma
It sounded bad but to be honest I felt slight relief at a diagnosis after 2 years of horrible symptoms and mental anguish.

Treatment on the NHS started quickly in March 2017, with a 6 month course of chemotherapy every 2 weeks.
It wasn't easy. It was definitely scary. It was the start of a new life for me and everyone around me.

After 2 months a PET scan showed remission (although I was still in and out of hospital with various infections) and thought ‘’could this be a sign of my immune system fighting back’’?

However, a PET scan at 6 months showed it was back and aggressive - on my spine, ribs, lungs, hip and lymph nodes (everywhere!).

I needed a second type of treatment.

I received this new treatment in November and December 2017.
It was harsh (to say the least) and most mornings I was still being sick as I arrived at the hospital.

A PET scan in January gave more bad news - the drugs had no effect on the cancer.

I needed a third type of treatment.

I was referred to UCLH Macmillan in London.
If you ever end up in a life or death situation like mine, this place and the people are amazing.
They helped me secure a place on a trial comparing a new drug to one that was currently being used by the NHS.
The new drug was showing particularly good results for my type of cancer but, to my despair, I was randomly placed to receive the drug that is already available.

Another 2 months passed and another PET scan showed mixed response to the currently available treatment
The cancer had cleared in some areas, but progressed in others – meaning that the current drug was no longer effective.

Was I running out of options?

I needed a fourth type of treatment.

The next session of chemotherapy was horrific - I was in hospital for 9 days and it resulted in me collapsing and having problems with my kidneys.
After 2 days at home I had to return to hospital as I had contracted sepsis.
2 weeks later, I had to receive another 5 days of this chemotherapy.

Another PET scan showed these treatments had made no impact.
The cancer is now in my liver, abdomen and in more areas on my lungs.

I need a fifth type of treatment.

Though I have another treatment planned, my consultant doesn’t believe this will work.
There are no more options.
Except the trial treatment that was proposed to me by the specialists at UCLH Macmillan.
This drug is legal and available, but because it is brand new and therefore too expensive, it is not available on the NHS for Hodgkin's Lymphoma.
This drug called Nivolumab. More information can be found in the link below:
Nivolumab 
The treatment costs an estimated £50,000 and includes blood tests and PET scans that I'll need to pay for privately.

With this drug my consultant believes my cancer could be put into remission.
Which would mean I could finally have a Stem Cell transplant - which presents its own challenges (and is a hurdle for another time!).

I need to find a way to fund this hopefully lifesaving treatment.
To do that I need to call upon the generosity of you.

Please help. Every penny counts.

If you are unable to donate money, please consider signing up to the stem cell registry (link below).
They desperately need more people registered and the test is a simple swab of the mouth that you send away in an envelope.

Thank you for taking time to read and share this,
Jade xxx

Stem Cell Registration
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PET scan done now the wait begins. All the specialists will discuss it at their meeting Thursday - the day I get married! Then I should have the results within a couple of weeks. Please keep everything crossed that the drug is helping x
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I have one more infusion of Pembro left before a PET scan is arranged at the end of November. I must be nervous as I haven’t been sleeping well the last couple of nights.
Having said that, I’m happy as I’m feeling quite well considering everything and I have hair! Whoop whoop!
So taking this opportunity Vince and I are going to have a shotgun wedding towards the end of November at a registry office.
I cannot wait, he has been so wonderful and strong and caring, and I truly cannot express the amount of love I have for him. ❤️
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The last few weeks have been a whirlwind of activity and I've not had the chance to update on here until now.

Tonight I attended a charity event (for myself) arrange my the owners of McDonalds (Mayflower, Eastgate, Laindon and Festival) and their amazing employees raising over £1200.

Colleagues at work have been organising raffles and cake sales with more events to come.

I've had my first round of a newly approved drug which I was part of a trial for earlier this year (when I got the approved drug and not the trial one). I'll be having a PET scan in a month or so to see how the cancer is reacting so have a little time before starting anything new if needed.

Fingers crossed. Thank you everyone for donating, sharing this link, and for your time and effort in organising fund raising events. X
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I'm currently on 'temperature watch' after spending a few days in hospital with an infection.

If someone receiving chemotherapy has a single reading of 38.5 or more than 38 over an hour, they are off to A&E and this is what happened to me.

A&E then have to book you in and have you hooked up to antibiotics and a bunch of other medications within an hour.

Now that I am back home I plan on taking it slow to make sure my body fully recovers.
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£38,353 of £50,000 goal

Raised by 823 people in 3 months
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