Rachel &Brooke

£16,192 of £15,500 goal

Raised by 727 people in 6 months
My daughter Rachel who is 33 has inherited a rare form of aggressive dementia called Gerstmann–Sträussler–Scheinker syndrome.
Rachel was fully diagnosed at the end of 2017,there is no treatment and most unfortunately no cure.
This condition is extremely rare especially in young people.
She has an 8yr old daughter and is a single parent living alone in Chesterfield.
 Her mother also has this condition,she is currently receiving palative care.
I am trying to raise funds to give both Rachel and her daughter a holiday to remember in Disney Land Florida .
Rachels condition is deteriating at an alarming rate with loss of both mobility and memory. 
Rachel was a childcare nurse  for many years before she tragically became ill.
Funds are needed urgently so that they can both have fun times together before the eneviatable happens.

As a family we have had and continue to have tough emotional times since her diagnosis, and with the daunting prospect of even more to come we are determined to make every day as happy and joyful as possible for both of them.31952474_153363919832210_r.jpeg

A holiday in Disneyland would give Rachel and Brooke some wonderful everlasting memories.

Please help if you can.

Thankyou for your love and support in these difficult times.

Kevin & Melanie Potter
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6 months now since we started fundraising,donations and kind offers are still coming in for Rachel and Brooke.
Sometime in May they will be going to Harry Potter studios in London,many thanks to the willow foundation for this wonderful gift.
Thanks to Ashgate Hospice,Rachel has recorded an oral history of herself to be included in Brookes memory box.
There are further fundraisers in the planning stages for later on this year.
Hopefully they will be moving into their specially adapted house near to Brookes school very soon.
Rachel now has a fantastic care team who have lifted her spirits and have improved Rachels quality of life immensely,they are planning lots of outings and activities for both Rachel and Brooke.
Less than 9 weeks before we go to Disneyland Florida !
None of this would have been possible without the kindness of all who have donated and raised funds for our Daughter and Grandaughter.
We remain extremely humbled by the love and affection and generosity shown by so many.
Rachel and Brooke’s Journey continues. ❤️
Thankyou one and all
Kev & Melanie Potter xxxxxx
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Hello. After 4 month's of fundraising the total stands at nearly £23.000. I would like to thank all of the donators and fundraisers for all the hard work kindness and generocity shown. Rachel and Brooke had a lovely Christmas with family. 6th April is fast approaching when we can make some beautiful memories for Rachel and Brooke. Today is Rachel's 34th birthday she's had a lovely time. Next Wednesday is the funeral of her mum June who sadly passed away just before Christmas having bravely struggled with this horrific desease for the last 8 years. It will be a difficult time for all. An adapted property has been sourced by Rachel's local Council and hopefully both Rachel and Brooke will be moving in around February once all the adaptations have been completed. Rachel will be having 24/7 care starting in the next few weeks. The fundraising will continue for as long as possible. I hope you all had a peaceful Christmas and happy new year. Until the next time. Love to you all. Kevin & Melanie Potter.xxxxx
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Latest news, Grand Total so far raised is just short of £20.500 ❤️fantastic ! This weekend we will be taking Rachel and Brooke to Whitby curtousy of Wendy and Andy Bell ❤️ and later this month there are 3 fundraising coffee mornings taking place in Clay Cross,many thanks to Kathy and Kelly for organising❤️at the end of November we have another fantastic musical fundraiser at Arkwright Miners Welfare ❤️more about that in the next update. Just a few things to sort out for April’s trip to Disneyland Florida..the girls are really looking forward to going to the USA.
The appeal continues....much love and many thanks to all. Kevin& Melanie Potter ❤️❤️❤️
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£16,192 of £15,500 goal

Raised by 727 people in 6 months
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